Over the last 12 months since April 2020, we have seen a large increase in the request for our services. In fact we have seen a 156% increase. Throughout the Pandemic we have continued to offer our main services and have indeed not only moved the majority of our services online but we have increased the services we offer.
Please help us by completing the following Survey. You will be helping us by telling us how we’ve done or what we could have done better, so we can improve our services. Please answer the Survey questions thinking about the last 12 months since April 2020.
To start the Survey please click the orange button ‘next’ underneath the title heading below. If you any accessibility issues in accessing our Survey please contact us.
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How would you describe yourself? ie patient, carer, partner, health professional, legal professional...
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Patient |
19 |
86.36% |
| Partner/Spouse |
0 |
0% |
| Relative/Family Member |
2 |
9.09% |
| Professional Carer |
0 |
0% |
| Parent/Guardian |
0 |
0% |
| Friend |
0 |
0% |
| Healthcare Professional |
0 |
0% |
| Legal Professional |
1 |
4.55% |
| Private Clinic |
0 |
0% |
| Supplier |
0 |
0% |
| Other |
0 |
0% |
How did you first hear about Burning Nights CRPS Support?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| I heard about you on the TV |
0 |
0% |
| On social media |
5 |
19.23% |
| Word of Mouth |
3 |
11.54% |
| From a healthcare professional |
3 |
11.54% |
| Through a search engine (e.g. Google, Bing etc) |
9 |
34.62% |
| From Versus Arthritis |
1 |
3.85% |
| At an exhibition |
0 |
0% |
| Through Pain UK |
0 |
0% |
| Through another charity |
2 |
7.69% |
| Via our e-newsletter |
0 |
0% |
| An advert or article (in print, online or elsewhere) |
0 |
0% |
| Through a lawyer/law firm |
0 |
0% |
| From a commerical organisation or private company |
0 |
0% |
| From a volunteer |
0 |
0% |
| I heard the charity mentioned on the radio |
0 |
0% |
| Another way |
1 |
3.85% |
| I can't remember |
2 |
7.69% |
| Radio announcement or advert |
0 |
0% |
| At an event |
0 |
0% |
Have you contacted Burning Nights CRPS Support in the last 12 months?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Yes |
19 |
79.17% |
| No |
3 |
12.5% |
| I don’t know |
1 |
4.17% |
| Not applicable |
1 |
4.17% |
Have you contacted Burning Nights CRPS Support more since the start of the Covid-19 pandemic?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Yes |
14 |
63.64% |
| No |
7 |
31.82% |
| About the same |
0 |
0% |
| Don’t know |
1 |
4.55% |
| Have not contacted the charity since the start of the pandemic |
0 |
0% |
Do you think your CRPS (or your partner’s/young person’s/family member’s) has worsened since the start of the Covid-19 Pandemic?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Yes - it has worsened |
16 |
66.67% |
| Stayed the same |
5 |
20.83% |
| No - it has improved |
0 |
0% |
| Not sure |
0 |
0% |
| Not applicable |
3 |
12.5% |
Do you think your mental health has worsened since the start of the Covid-19 Pandemic?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Yes - it has worsened |
14 |
63.64% |
| Stayed the same |
4 |
18.18% |
| No - it has improved |
0 |
0% |
| Not applicable |
4 |
18.18% |
Please tell us how you have been in contact with us in the last 12 months? Please tick all that apply
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| By telephone/helpline |
4 |
5.8% |
| On Facebook |
6 |
8.7% |
| On Twitter |
2 |
2.9% |
| By email |
7 |
10.14% |
| In person |
2 |
2.9% |
| Via the website |
5 |
7.25% |
| Support Group |
8 |
11.59% |
| Annual Conference |
3 |
4.35% |
| On LinkedIn |
0 |
0% |
| via Instagram |
2 |
2.9% |
| On the Forum |
0 |
0% |
| I attended a CRPS awareness event as a health professional |
0 |
0% |
| via the Live Chat |
4 |
5.8% |
| I ordered from the online shop |
4 |
5.8% |
| via the Befriending Service |
0 |
0% |
| via the Counselling Service |
2 |
2.9% |
| I receive the email newsletter |
8 |
11.59% |
| I made a one off donation |
2 |
2.9% |
| I have raised money for the charity |
2 |
2.9% |
| I attended a virtual event |
3 |
4.35% |
| I made a regular donation |
1 |
1.45% |
| via another social media channel |
2 |
2.9% |
| To Volunteer |
2 |
2.9% |
| Other |
0 |
0% |
| I have not contacted the charity for support |
0 |
0% |
| I am not sure |
0 |
0% |
| Not applicable |
0 |
0% |
Thinking of your most recent contact with us, on a scale of 1-10, how satisfied were you with your experience or communication with Burning Nights CRPS Support With 1 = very unsatisfied up to 10 = very satisfied
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| 1 |
0 |
0% |
| 2 |
0 |
0% |
| 3 |
1 |
4.55% |
| 4 |
0 |
0% |
| 5 |
0 |
0% |
| 6 |
0 |
0% |
| 7 |
1 |
4.55% |
| 8 |
0 |
0% |
| 9 |
3 |
13.64% |
| 10 |
17 |
77.27% |
On a scale of 1-10, how easy was it to access the support services and to get what you needed from Burning Nights CRPS Support? With 1 = very difficult up to 10 = very easy
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| 1 |
0 |
0% |
| 2 |
0 |
0% |
| 3 |
1 |
4.55% |
| 4 |
0 |
0% |
| 5 |
0 |
0% |
| 6 |
1 |
4.55% |
| 7 |
0 |
0% |
| 8 |
0 |
0% |
| 9 |
2 |
9.09% |
| 10 |
18 |
81.82% |
Overall how would you rate the support you received from Burning Nights CRPS Support?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Excellent |
19 |
86.36% |
| Very Good |
1 |
4.55% |
| Good |
1 |
4.55% |
| Neutral |
0 |
0% |
| Poor |
1 |
4.55% |
| Very Poor |
0 |
0% |
Which of these services have you accessed in the last 12 months? Please tick all that apply
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Main charity website |
15 |
20.55% |
| Online Community Forum |
6 |
8.22% |
| Email support |
1 |
1.37% |
| Telephone helpline |
3 |
4.11% |
| Social Media support |
4 |
5.48% |
| Fundraising support |
1 |
1.37% |
| Access to legal services / Legal Panel |
0 |
0% |
| Range of CRPS info & awareness products |
8 |
10.96% |
| Annual National CRPS conference |
4 |
5.48% |
| Online Support Groups |
8 |
10.96% |
| CRPS awareness sessions |
1 |
1.37% |
| Took part in CRPS research projects and surveys |
2 |
2.74% |
| Email newsletter |
10 |
13.7% |
| Live Chat |
2 |
2.74% |
| Befriending Service |
0 |
0% |
| Counselling service |
2 |
2.74% |
| Physical Support Groups |
1 |
1.37% |
| Online webinars |
3 |
4.11% |
| As a volunteer |
2 |
2.74% |
| Other |
0 |
0% |
| Have not accessed services/Not applicable |
0 |
0% |
How easy was it for you to access our services?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Very Easy |
18 |
81.82% |
| Easy |
3 |
13.64% |
| Don't know |
1 |
4.55% |
| Difficult |
0 |
0% |
| Very Difficult |
0 |
0% |
| Not applicable |
0 |
0% |
Would you use any of our support services again in the future?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Yes - very definitely |
18 |
81.82% |
| Yes - definitely |
2 |
9.09% |
| Yes - maybe |
1 |
4.55% |
| No - maybe not |
1 |
4.55% |
| No - definitely |
0 |
0% |
| No - very definitely not |
0 |
0% |
What other services would you like to see the charity provide?
This question has free text answers which cannot be shown
Overall, how satisfied are you with the services that we offer as a charity?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Very Satisfied |
19 |
86.36% |
| Satisfied |
1 |
4.55% |
| Unsure/Not applicable |
1 |
4.55% |
| Dissatisfied |
1 |
4.55% |
| Very Dissatisfied |
0 |
0% |
Would you recommend Burning Nights CRPS Support charity to your friends, family & colleagues?
| Answer |
Votes |
Percentage |
| Answer |
Votes |
Percentage |
| Yes - Very Definitely |
19 |
86.36% |
| Yes - Definitely |
2 |
9.09% |
| Maybe |
1 |
4.55% |
| No - Definitely Not |
0 |
0% |
| No - Very definitely not |
0 |
0% |
Please make any other comments or suggestions about the charity, the support you have received and/or services that we offer
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