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Burning Nights CRPS Support are excited to invite you to the CRPS Patient and Carer Information Day 2024, where we will be celebrating the 10th anniversary of this flagship event for the Complex Regional Pain Syndrome (CRPS) community.
The event will take place on Saturday 16th November 2024 during CRPS Awareness Month. Join us at the Hilton Northampton for a day filled with valuable insights, connection, and empowerment.
Following the success of last year’s event, we will be bringing together patients, families, carers and friends for another day of community, in-person support and learning.
This is an unmissable chance to meet other patients, carers, healthcare professionals and legal experts. You can share your experiences and connect with others who truly understand the journey of living with Complex Regional Pain Syndrome.
We know living with CRPS can feel so isolating, but you don’t have to go through it alone: the Burning Nights CRPS community is here for you, and we’d love to see you.
The event remains free, including lunch and refreshments. However, any donations would be greatly appreciated to help support the work that Burning Nights CRPS Support does.
We’re focusing on what matters most - supporting and connecting with our community. Here’s what you can expect:
Morning Session: Professionals and expert speakers will share practical advice, treatment options, and the latest research on living with and managing CRPS.
Afternoon Session: Enjoy an open forum and networking opportunities. You’ll have the chance to ask questions directly to healthcare and legal professionals. Our speakers will visit each table, encouraging open dialogue and personal connections. It’s a unique chance to meet others who truly understand what you’re going through.
Plus, you can meet our charity team, including our Founder and Chair of Trustees for Burning Nights, Victoria Abbott-Fleming MBE, and explore our shop with discounted charity products.
“It was great to meet so many people who actually know what the condition is like. The experts were full of information. Would recommend you attend.”
“It was brilliant to hear about all the different treatment options available and schemes I can access to help me manage. Sometimes you feel like you’re on your own with CRPS so it was really great to spend the day with people who did understand.”
“We’ve been to them all. It’s kept us up to date with medical advances on CRPS, we meet friendly faces and you’ll always learn something new at each conference.”
“The information from the experts is really good. The opportunity to speak to them afterwards is really good as well.”
“I thought the doctor was amazing, I thought what he had to say was really really good and interesting. It’s hard to get doctors who listen and understand. It’s nice to meet people who are in the same situation.”
“Sometimes in the community you feel like you’re the only parent with a child with this condition and you don’t know where to go, who to turn to. To have somebody to talk to who understands what you’re saying is amazing.”
“Thank you for such a great day. I learnt so much and got so much out of the day. We would love to attend again in the future.”
Interested in joining us? Book your place now and be part of a community that understands and supports each other. We can’t wait to see you there!
Here are all the event details and everything you need to know for our CRPS Patient & Carer Information Day 2024:
Feel free to come and go throughout the day.
Address: 100 Watering Lane, Collingtree, Northampton, NN4 0XW
The CRPS Patients and Carers Information Day is free for all CRPS patients, their loved ones, and carers.
If you can, please consider making a donation, either as a one-off gift or regularly. Donate here.
On the day, we’ll provide lunch and refreshments free of charge. Expect a variety of options, including vegetarian and vegan choices.
If you have any specific dietary requirements, please contact the hotel directly with your requests.
The Hilton Northampton is a hotel with the conferencing area having a flat entrance leading from the main hotel reception. The area has a mixture of carpet and tiles. This is a flat area which is suitable for wheelchairs and scooters. There are accessible toilet facilities in the hotel and also in the conference area.
Planning to stay overnight? The Hilton Northampton is offering a special rate for attendees of the CRPS Patient & Carer Information Day 2024. This exclusive rate is available until 15th October 2024 or until the group block is sold out.
To book your room at this special rate, follow the link provided on our event page or contact the hotel directly at 01604 700 666. Be sure to book early to secure your accommodation! Please quote "Burning Nights"
Parking is available at the Hilton Northampton, and the charity will cover the cost for attendees on the day of the event (16th November 2024).
When you arrive, please inform the reception that you have parked for the Burning Nights CRPS Support Conference.
If you’re staying overnight, parking is available at a reduced rate of £5.00 per day. Be sure to mention your stay to get the discount.
Getting your tickets for the CRPS Patient & Carer Information Day 2024 is easy and free! Each attendee needs to register individually to secure their spot. After booking, you’ll receive a confirmation email with all the details.
How to Get Your Free Tickets:
Each attendee must be registered for their own individual free ticket. You will need to book each ticket individually and provide the names of each person attending.
Burning Nights CRPS Support has been dedicated to helping those affected by Complex Regional Pain Syndrome (CRPS) since 2014. Founded by Victoria Abbot-Fleming, who lives with the condition who personally understands the struggles of CRPS, the charity focuses on education, awareness, and support.
CRPS is a painful condition that impacts 1 in 3,800 people each year, usually triggered by a trauma. Despite its prevalence, it’s not well understood. Burning Nights CRPS Support aims to bridge this gap by providing crucial information and support.
In 2022-2023 alone, Burning Nights CRPS Support provided over 4,500 individuals with support from one of our services and over 86,000 people with clear and up-to-date information and trained numerous healthcare professionals. Learn more about the impact of Burning Nights CRPS Support by clicking on the Our Impact page link.
Our goal is to support CRPS patients and their families, ensuring they have the knowledge and resources to navigate their journey.
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