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The CRPS Patient & Carer Information Day is back for 2024!
Following the success of the new format for the Annual National CRPS Conference in 2023, this year's event will again focus on patients living with Complex Regional Pain Syndrome (CRPS) and their loved ones, families and friends to offer support and aid in understanding of the condition, treatment options and more.
Join us in person for a day of education, support, and empowerment at our CRPS Patient and Carer Information Day 2024. This event is specially designed to provide valuable information and resources to patients and their caregivers, equipping you with the knowledge necessary to navigate your healthcare journey with confidence.
The event will be split into two halves. The morning will feature professionals and expert speakers talking about living with and managing CRPS. The afternoon will be an opportunity to network with healthcare and legal professionals, to be able to speak directly with each of the speakers and other professionals to ask your questions. The speakers and other professionals will visit each table of attendees so you can ask your questions. This gives an open forum and a networking opportunity for patients, loved ones and carers to ask questions and connect with other patients and carers. Above all, you'll be amongst people who understand you and what you're going through.
If you are interested in coming along to our CRPS Patient & Carer Information Day 2024 in Northampton, book your place now.
To continue holding our free events, such as the annual conference and patient and carer days, we need your help. Burning Nights CRPS Support does not receive any government funding, so please consider making a donation, if you can. We are extremely grateful to anyone who can support us in this way, and we thank you in advance for your generosity.
Professor Holly Blake is a chartered health psychologist and Professor of Behavioural Medicine at the University of Nottingham. She has expertise in the design, delivery, evaluation, and implementation of complex interventions for health across the public, private and third sector.
Holly leads research in health promotion, health behaviour change, patient experiences and self-management of chronic conditions across populations and settings. This includes a focus on self-management for people living with long term conditions and behavioural interventions to promote self-care practices, health behaviours, and uptake of health screening and health services. She has a particular interest in supporting health and wellbeing and the workplace, and how digital interventions can be used for education, training and health promotion. She is a member of the NIHR Nottingham Biomedical Research Centre and the Nottingham Pain Centre Versus Arthritis.
Dr Sumira Riaz is a Registered Health Psychologist, Cognitive Behavioural Therapist and Founder of Unboxed Psychology, a behaviour change, patient engagement consultancy. Sumira has 18 years of experience working within the NHS, charity section and healthcare agencies specialising in the Patient Engagement, most recently as the Centre of Excellence Lead within the patient engagement division. She is the co-chair of the PM Society patient engagement interest group and the education and training lead for the Division of Health Psychology. As the founder of Unboxed Psychology, her mission is to transform patient engagement in healthcare through evidence-based psychological strategies.
This presentation will discuss the links between psychology and pain. The experience of pain will differ across population, it is common for those living with chronic pain to develop a personalised approach of coping, but many still struggle, which has adverse effects on their quality of life and overall mood- this is where psychology can help.
Lucy Redman is an Advanced Neuro-Physiotherapist and FES Consultant, now working with a new community rehabilitation service in Shropshire, “Healthsec Rehab” who aim to take a full holistic approach to rehabilitation and support.
Lucy graduated from Keele University in 2004 with a BSc in Physiotherapy and specialized in Neurological Physiotherapy providing long-term support and rehabilitation to clients within their homes and community. Training in Functional Electrical Stimulation in 2009, Lucy started to use this technology for a range of Neurological conditions and, in 2018, joined a Specialist NHS Centre in the Midlands and worked for 5 years in the Functional Electrical Stimulation (FES) clinic.
Lucy moved into Private Practice in June 2023 to pursue new treatments in the ever-growing field of Neurological Rehabilitation. Her interest has expanded to international research in the field of Functional Electrical Stimulation, and she continues to explore how Electrical Stimulation and other Neuromodulation technologies can help with Neuroplasticity and other conditions, e.g. dystonias and neuropathic pain.
Here are all the details you will need for our CRPS Patient & Carer Information Day 2024:
The day is FREE for CRPS patients, their loved ones and carers.
On the day, lunch and refreshments will be included free of charge. Please consider making a donation either as a one off gift or as a regular donation, by clicking the link below.
Refreshments and lunch (including vegetarian and vegan options) are free for attendees as part of the day. If you have any additional dietary requirements, please contact the hotel directly with your requests.
Hilton Northampton will be providing a guaranteed special rate for attendees of the CRPS Patient & Carer Information Day 2024. The rate is only available until the 15th October 2024 or until the group block is sold out. To book a room at the hotel please click the link below. If you are planning to stay at the hotel, please remember to book early to avoid disappointment.
To reserve your room at the special rate, follow the link below or contact the hotel on 01604 700 666.
Click here to book your room on the hotel's website
Car parking is available. The charity will be paying the cost of car parking for attendees on a per vehicle basis, only on the day of the event (16th November 2024). When you arrive at the venue, please let them know that you have parked in the car park and that you are attending the Burning Nights CRPS Support conference.
However, if you will be staying overnight at the hotel, you will need to pay for your own parking, though this is available at a reduced rate of £5.00 per day.
The Victoria Ellen Williams Award for Outstanding Contribution is presented in honour of a member of the Volunteer Team at Burning Nights CRPS Support who sadly passed away. Vicky joined the team as a Befriender to help support others affected by CRPS and to give back to Burning Nights CRPS Support, having found comfort in the charity when diagnosed with the condition herself. In her time with the Virtual Befriending Service, Vicky was a friendly ear and compassionate voice to all of her befriending clients.
In tribute to Vicky’s own contribution to the charity, this award was introduced to recognise others who go above and beyond in their volunteer role. You do not need to be a member of the team at Burning Nights CRPS Support to nominate someone, but if you are then you can nominate any other volunteer, but you cannot vote for yourself. Voting will be anonymous to the Volunteer Team.
Nominations will remain open until Monday 14th October 2024. The award will be presented in-person at the CRPS Patient & Carer Information Day 2024 on Saturday 16th November.
Nominate a volunteer who deserves special regonition for their work!
To get your FREE TICKET to attend the CRPS Patient & Carer Information Day 2024, click 'Book Place' below. After booking, you will receive an email to confirm your registration.
Each attendee must be registered for their own individual free ticket. You will need to book each ticket individually and provide the names of each person attending.